I have been struggling with this blog for weeks. The first draft was vicious, the second angry... I had to stop, emotions felt long ago still hurt, decades later for numerous reasons. I had to ask Jesus to remove it from me, until I could think about it without becoming emotional... lol I have since discovered, that is not possible. ALL things are lessons GOD will have us learn & me sharing this - could be, lifesaving. The Lord works in mysterious ways.
Recently, I learned about Sick kids hospital wanting to introduce the option of assisted suicide to its patients, children, as sick kids is a hospital for children. When we were there for Storms tests & diagnoses, I believed then 'the slogan' had more about offering HOPE than M.A.I.D... as it should have. I want to share how I feel, now. Storm is older and aware & we are all a little wiser. By the grace of God.
By The Grace of God - let's get right to the point: They were wrong. They WERE WRONG. They, were WRONG.
When we left Sick Kids we were no better off, well that's not entirely correct as they did diagnose hearing loss and vision loss, so that we could get glasses & hearing aids.. the rest - the rest was a nightmare - literally at times. The rest was a diagnoses of fucking doom, that took me to the depth of depression like nothing ever did. I also remember the moment we were told your sons as an "orphan disease" so rare, no-one is going to put any money into research for it.
We want you to prepare: He will need serious narcotics, I still have his 1st bottle of liquid codeine, what's left of it, now a giant crystal, I remember how the medication would knock him out, it still makes me sad. Drugging my child into a zombie helping nothing, adding more anxiety. Medicine we were told would indeed destroy his quality of life and internal organs - adding to early termination. Expect him to be in a wheel chair by early childhood with a life expectancy somewhere around 12... He probably won't live long past 12. Now, go home and have a good life.
I never told Storm how I had to go to the Dr. because I kept dreaming (for weeks after) planning his funeral and his tiny body would not fit in the casket and I would wake up crying. My Dr. told me that was common, for parents that were going through such things. I could not stop worrying about him dying, because they told me he would and they were FUCKING WRONG. When I think of parents - sitting in the office with the Dr.s, specialists, charts, test results, exhausted and terrified and receiving a Diagnoses of DOOM - BUT WAIT! NOW lets add to the fucking list, this brochure for you to take home and PONDER - assisted death for that tiny human - that we can't HELP so perhaps you should put it down. I can imagine what those parents are discussing. I remember the conversations we had, Imagine - IF it had been us NOW, I have no doubts with the diagnoses of doom and death - THAT WAS WRONG. They would have told us perhaps to consider M.A.I.D.
I remember when getting desperate because of the pain when Storm was about 12, he did cry and tell me he didn't want to live anymore a life full of pain, medicine was making him sick and depressed and he was giving up. He remembers some things. He remembers his school principal a grown man tear up, who was advised to also come to the meeting with the education, mental health specialist. He remembers them telling us not to let him do things that might harm him, like skateboard or run.. to look forward to an office job.. DIAGNOSES of Doom & they were wrong
Assisted death for babies, children... teens.. Ask yourself this: What IF THEY are WRONG?
What burden are they ADDING, unnecessarily.. for life?
If THEY don't know - how about they offer HOPE FIRST!?
How about they suggest we teach our children about Jesus!
A relationship with Jesus is PROVEN to help children, adults too.
Or... How about they Shut The Fuck Up when THEY don't know & stop playing God.
I also remember the moment when I got on my knees and begged God to let my son live.
I promise I will do all that is asked, I will wake every day and thank God for my son, family, life.
The Lord works in mysterious ways... I tell ya' - nothing brought me faster and closer to God than the thought of losing my only son. Praise Jesus, Lord you gave us - your only son.
Children are, OUR gifts from God. EVERY SINGLE ONE. What a blessing it has been - being called "mom! Mama!!, MoooooMMMM!" lol. I have a few things to be thankful for because of it all: Thank you Lord for introducing us to our Cannabis family & medicine, they spared my son from a life of opiates & educated us on this healing plant by some of the best - In The world! Amen. I never took my child for granted, not one day & never will. We are thankful we trusted in God. When you are told your child is going to die let me assure you - all other priorities get in line, for me, anyhow. We look back and Thank God we can do so! Not only were they wrong but we have risen above. Storm in particular has pushed himself beyond - that's how you say Thank You to God.. and you keep going.
I keep painting.
Perhaps it was so I could sit here today, and tell you:
THEY WERE WRONG!
And NOW - their diagnoses of doom got a whole lot worse for many parents.
Share this story, please. Some mistakes we can not fix.
TRUST in God before man - including Dr.s.
I do NOT agree with Sick Kids offering M.A.I.D. ... it's too slippery a slope.
When Poverty becomes a death sentence: https://www.youtube.com/watch?v=ETPE0uDtAe8
https://www.youtube.com/watch?v=50_l6XJkS30
Recently, I learned about Sick kids hospital wanting to introduce the option of assisted suicide to its patients, children, as sick kids is a hospital for children. When we were there for Storms tests & diagnoses, I believed then 'the slogan' had more about offering HOPE than M.A.I.D... as it should have. I want to share how I feel, now. Storm is older and aware & we are all a little wiser. By the grace of God.
By The Grace of God - let's get right to the point: They were wrong. They WERE WRONG. They, were WRONG.
When we left Sick Kids we were no better off, well that's not entirely correct as they did diagnose hearing loss and vision loss, so that we could get glasses & hearing aids.. the rest - the rest was a nightmare - literally at times. The rest was a diagnoses of fucking doom, that took me to the depth of depression like nothing ever did. I also remember the moment we were told your sons as an "orphan disease" so rare, no-one is going to put any money into research for it.
We want you to prepare: He will need serious narcotics, I still have his 1st bottle of liquid codeine, what's left of it, now a giant crystal, I remember how the medication would knock him out, it still makes me sad. Drugging my child into a zombie helping nothing, adding more anxiety. Medicine we were told would indeed destroy his quality of life and internal organs - adding to early termination. Expect him to be in a wheel chair by early childhood with a life expectancy somewhere around 12... He probably won't live long past 12. Now, go home and have a good life.
I never told Storm how I had to go to the Dr. because I kept dreaming (for weeks after) planning his funeral and his tiny body would not fit in the casket and I would wake up crying. My Dr. told me that was common, for parents that were going through such things. I could not stop worrying about him dying, because they told me he would and they were FUCKING WRONG. When I think of parents - sitting in the office with the Dr.s, specialists, charts, test results, exhausted and terrified and receiving a Diagnoses of DOOM - BUT WAIT! NOW lets add to the fucking list, this brochure for you to take home and PONDER - assisted death for that tiny human - that we can't HELP so perhaps you should put it down. I can imagine what those parents are discussing. I remember the conversations we had, Imagine - IF it had been us NOW, I have no doubts with the diagnoses of doom and death - THAT WAS WRONG. They would have told us perhaps to consider M.A.I.D.
I remember when getting desperate because of the pain when Storm was about 12, he did cry and tell me he didn't want to live anymore a life full of pain, medicine was making him sick and depressed and he was giving up. He remembers some things. He remembers his school principal a grown man tear up, who was advised to also come to the meeting with the education, mental health specialist. He remembers them telling us not to let him do things that might harm him, like skateboard or run.. to look forward to an office job.. DIAGNOSES of Doom & they were wrong
Assisted death for babies, children... teens.. Ask yourself this: What IF THEY are WRONG?
What burden are they ADDING, unnecessarily.. for life?
If THEY don't know - how about they offer HOPE FIRST!?
How about they suggest we teach our children about Jesus!
A relationship with Jesus is PROVEN to help children, adults too.
Or... How about they Shut The Fuck Up when THEY don't know & stop playing God.
I also remember the moment when I got on my knees and begged God to let my son live.
I promise I will do all that is asked, I will wake every day and thank God for my son, family, life.
The Lord works in mysterious ways... I tell ya' - nothing brought me faster and closer to God than the thought of losing my only son. Praise Jesus, Lord you gave us - your only son.
Children are, OUR gifts from God. EVERY SINGLE ONE. What a blessing it has been - being called "mom! Mama!!, MoooooMMMM!" lol. I have a few things to be thankful for because of it all: Thank you Lord for introducing us to our Cannabis family & medicine, they spared my son from a life of opiates & educated us on this healing plant by some of the best - In The world! Amen. I never took my child for granted, not one day & never will. We are thankful we trusted in God. When you are told your child is going to die let me assure you - all other priorities get in line, for me, anyhow. We look back and Thank God we can do so! Not only were they wrong but we have risen above. Storm in particular has pushed himself beyond - that's how you say Thank You to God.. and you keep going.
I keep painting.
Perhaps it was so I could sit here today, and tell you:
THEY WERE WRONG!
And NOW - their diagnoses of doom got a whole lot worse for many parents.
Share this story, please. Some mistakes we can not fix.
TRUST in God before man - including Dr.s.
I do NOT agree with Sick Kids offering M.A.I.D. ... it's too slippery a slope.
When Poverty becomes a death sentence: https://www.youtube.com/watch?v=ETPE0uDtAe8
https://www.youtube.com/watch?v=50_l6XJkS30
