All the medication that goes in our system eventually if it does not stick around and fuck - (alter) your body in some way.. it leaves via your pee. Years ago a friend told me of the cancer medication she peed out of her system, how it turned the water a deep red and frightened her... and she like me, then started to think - well then, where does it go?
Cancer medications where you can't have your husband in the same room as you, for 48 hours or it's toxic!?
Sadly, I do know about this stuff first hand, because I have first hand friends that deal with this shit. Forgive me, but I have had an emotional day mentally after attending my first support group for TN. It only hit me after I retuned home and thought about it all afternoon. Then napped in the sunshine with poppy for 2 hours ;) Amen.
You know what I heard a lot of, besides people -who I do think can relate- to my pain.
That is strangely comforting. Is that strange? lol
One woman simply said: "You know when the dentist touches your tooth- and your not frozen, for a split second you want to go through the roof?"
Well that was a great way to describe it!
I get that so many times a day I give up counting... no wonder I am exhausted.
I will admit I was feeling.. defeated.
To look around the room and not one person has Hemi facial Spasm as well.
All very normal people, all have busy lives who suffer with TN, on top of life.
The topic of medication came up over and over again! Never good really. Except for me!
I'm the only one in the room with positive side effects. ;)
Holy cow! Forget it, I'm not going on anything else! I Am keeping it natural.
Rashes that leave you in the hospital and sick for weeks, throwing up.. the same stuff I hear and read about daily over and over again!! You know I get it, but 'I' don't want to play around with my liver or BRAIN or anything else if I can help it ever again.
Storm pointed out to me a while ago we all have to learn to live with a little pain, some physical, some mental, some both. We still all have choices to make every day and many do it!! WITHOUT drugs. When I hear of someone who is on an antidepressant I think of them as being 'on DRUGS' and I AM thankful for that change in my mindset!
I AM grateful for that change in my mindset!
What blew my mind or rather 'who' was this older woman, late 70's if I had to guess (I'm not really good at that though, and I can't remember names at all) she was sweet, her hair, makeup & outfit perfect! And it's an early meeting! She appeared 'to me' to be sleeping much of the meeting- Oh well, I saw it happen in church all the time.
Well, at the end of the meeting - who walks up to me and asks me about Cannabis? HER! LOL Sleeping, she was not!
How awesome, it puts a smile on my face now thinking of her. I wished I had cookies!
One for everyone in the bunch!!
I know what these people are dealing with! Yet, they all had smiles, and encouragement for each other, it was nice to see a few husband and wife teams. I think Norman is done. LOL He can join me next time. Not that I did not LOVE my friend Cathy's support.
If not for Cathy, I would not have gone. She was my driver.
We had to be there at 9:30. She attends mass with her sisters every Sunday. So it was really nice of her. It was our first drive on the 404! WOW! What a difference! It felt like we were there & home in the blink of an eye!
I am glad I went, it has given me much to think about.
I will go again. Nice to know I'm not crazy, alone, frustrated, "sitting crying in a corner"... which is very easy for me to do. Who will it help? Will it make a difference?
I refuse. WE have to keep busy!
Maybe those medications are NOT helping you?
Cannabis MIGHT! It might make you smile too!
WE MUST keep busy. Learn a new hobby. Volunteer, DRAW! PAINT!
KEEP BUSY! & BE. ;)
I know my blog can be all over the place.. so is my mind.
I know I'm making mistakes but I can't sit and re read.
I pray my message is understood. It is all I can do.
More on TN as soon as I can . ;)